EDS West Connect
OUR MISSION
Headquartered in Ventura County, CA, EDS West is a non-profit that:
* Will provide much needed support, important programs, advocacy & essential resources to EDSers.
* Aims to make Ehlers Danlos Syndrome a household name (like cancer, diabetes, heart disease etc) through a massive public awareness campaign (Billboards, magazines, TV commercials, social media etc) ending the health disparity and neglect that we face every single day.
* Will provide education to professionals (including but not limited to members of the medical community, CPS, social workers, attorneys, school nurses, medical students etc) on EDS.
* Has a future eye on creating a network of EDS experts & specialists on the West Coast & beyond.
Donate Here!
Awareness
Billboards, TV commercials, public awareness campaigns
Advocacy
Helping patients navigate their medical conditions, healthcare system and diagnosis
Giving patients a voice
Educating patients to assist in better managing their condition
Education
Traveling and hosting workshops, speaking engagements, educational series, public speaking etc.
Programs and Services
Patient Services
Scholarship programs
Service dog matching fund
Patient advocacy
Legal fund
Medical fund (surgical, travel, family out of pocket expense)
Partnership programs (AMF, RMH, DDG)
"As founder and president I am the team leader, overseeing our board of directors, programs and ultimately shaping our organization's future and maximizing our impact."
Dena Piquette-Garcia
President
"As co-founder and co-president, I have a leadership role in championing the mission of the nonprofit, building partnerships, and raising public awareness. My special focus in social work also allows me to support, empower and advocate for members of the EDS community."
Kylee Piquette
Co-President
"As co-founder and Secretary, I am dedicated to keeping our administrative processes streamlined and organized. I am in charge of keeping record of meetings, running our website, and managing social media accounts. It is my job to help communicate our mission, engage with our community, and make a difference."
Maysun Piquette
Secretary
COMING SOON
Please be patient with us as we create and add new features to our website. EDS West Connect wants to provide the most educational experience for our viewers and followers, watch as our site improves and changes to better the quality and content.