Our Team

EDS West Connect was established in 2023 by a family consisting of a mother and her two daughters, all of whom are affected by EDS and POTS. Our organization is proudly owned and operated by women with disabilities.

Dena Piquette-Garcia

President (B. Msc.)

The president of EDS West Connect is a dedicated and accomplished individual who brings a wealth of experience and passion to the nonprofit organization. She exhibits unwavering commitment to the mission of EDS West Connect, striving to enhance the lives of individuals affected by Ehlers-Danlos Syndrome and related conditions. Her leadership is characterized by a deep understanding of the unique challenges faced by the EDS community, as well as a tireless dedication to advocacy, research and support initiatives. Dena has sixteen years of experience in awareness, advocacy and support work. Through the strategic vision and compassionate approach the president plays a pivotal role in driving positive change and fostering a sense of belonging and empowerment among those served by the organization. 

Kylee Piquette

Co-President

The co-president of EDS West Connect is a distinguished leader who shares a profound dedication to the organizations mission. With a rich background in advocacy and a deep, personal understanding of the challenges faced by individuals with Ehlers-Danlos Syndrome and related conditions, she brings individual expertise to her role. Working closely alongside the leadership team, the co-president actively shapes the organization strategies and initiatives. Her commitment to nurturing a supportive community is evident in her empathetic approach and unwavering efforts. As co-president she makes a substantial contribution to EDS West Connect’s overarching goal of improving the lives of those impacted by these conditions. 

Maysun Piquette

Secretary 

The Secretary of EDS West Connect is a meticulous and organized professional who plays a pivotal role in ensuring the smooth operation of the organization. With a keen attention to detail and a strong commitment to transparency, she is responsible for maintaining accurate records, documenting important meetings, and facilitating effective communication among board members and stakeholders. Her dedication to the mission of EDS West Connect is evident through their reliable and efficient administrative support, which helps to keep the organization running seamlessly. In her role as Secretary, Maysun contributes significantly to the overall success and professionalism of the nonprofit.

Davis & Miller, 12 Pike St, New York, NY 10002, 1-541-754-3010
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